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  • × author_ss:"Trace, C.B."
  • × author_ss:"Zhang, Y."
  1. Trace, C.B.; Zhang, Y.; Yi, S.; Williams-Brown, M.Y.: Information practices around genetic testing for ovarian cancer patients (2023) 0.01 
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    Abstract
    Knowledge of ovarian cancer patients' information practices around cancer genetic testing (GT) is needed to inform interventions that promote patient access to GT-related information. We interviewed 21 ovarian cancer patients and survivors who had GT as part of the treatment process and analyzed the transcripts using the qualitative content analysis method. We found that patients' information practices, manifested in their information-seeking mode, information sources utilized, information assessment, and information use, showed three distinct styles: passive, semi-active, and active. Patients with the passive style primarily received information from clinical sources, encountered information, or delegated information-seeking to family members; they were not inclined to assess information themselves and seldom used it to learn or influence others. Women with semi-active and active styles adopted more active information-seeking modes to approach information, utilized information sources beyond clinical settings, attempted to assess the information found, and actively used it to learn, educate others, or advocate GT to family and friends. Guided by the social ecological model, we found multiple levels of influences, including personal, interpersonal, organizational, community, and societal, acting as motivators or barriers to patients' information practice. Based on these findings, we discussed strategies to promote patient access to GT-related information.
    Source
    Journal of the Association for Information Science and Technology. 74(2023) no.11, S.1265-1281
    Type
    a
  2. Zhang, Y.; Trace, C.B.: ¬The quality of health and wellness self-tracking data : a consumer perspective (2022) 0.01 
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    Abstract
    Information quality (IQ) is key to users' satisfaction with information systems. Understanding what IQ means to users can effectively inform system improvement. Existing inquiries into self-tracking data quality primarily focus on accuracy. Interviewing 20 consumers who had self-tracked health indicators for at least 6 months, we identified eight dimensions that consumers apply to evaluate self-tracking data quality: value-added, accuracy, completeness, accessibility, ease of understanding, trustworthiness, aesthetics, and invasiveness. These dimensions fell into four categories-intrinsic, contextual, representational, and accessibility-suggesting that consumers judge self-tracking data quality not only based on the data's inherent quality but also considering tasks at hand, the clarity of data representation, and data accessibility. We also found that consumers' self-tracking data quality judgments are shaped primarily by their goals or motivations, subjective experience with tracked activities, mental models of how systems work, self-tracking tools' reputation, cost, and design, and domain knowledge and intuition, but less by more objective criteria such as scientific research results, validated devices, or consultation with experts. Future studies should develop and validate a scale for measuring consumers' perceptions of self-tracking data quality and commit efforts to develop technologies and training materials to enhance consumers' ability to evaluate data quality.
    Source
    Journal of the Association for Information Science and Technology. 73(2022) no.6, S.879-891
    Type
    a

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